Sarah @ Home

Sarah has been home for a week now. I have been waiting to get some good pictures to post, but with all the buzz around, we haven't had too many opportunities. The kid eats around the clock!!

She has had a few "Issues" with tolerating her enzymes. The nutritionist gave us instructions to increase the levels of enzymes (almost doubling) from the previous level. We drop some granuals into applesauce and feed her before she gets her bottle.

She did fine with 4 "beads", but threw up EVERYTHING when we went to 8. Then, she didn't like 4! We have since gone back to ground zero and started more gradually giving her the enzymes.

Christina was very upset as throwing up is a sign of another bowel obstruction and that can be bad. So, I will continue to monitor that process. She has been gaining weight and the doctors are pleased.

Sarah has had a number of appointments with the doctors this week and has had to get 4 shots. This also could be affecting her enzyme tolerance, so we will see.

I saw that the Nobel Peace Prize for Medicine went to some folks working on genetically altering mice to exhibit human diseases. In all the articles, they mention CF being the main disease. I found out that the CF Foundation funded one of these doctors efforts. So, thanks to all of you who have given to the foundation over the years and come out to our events. YOU funded Nobel Peace Prize winning research and you should be proud of that!!!!!!!