Christina and I wake up at 7:00. We have been sitting, eating and sleeping for 4 days. I opt to go for a run as I can feel myself becoming even more gooey than normal.
The food in the hospital cafeteria is actually quite good. The portions are large and too pricey either. I might start changing my route home from work, even after Sarah gets out. This, unfortunately, is not good for a fat guy.
We head for the hospital about 8:30 AM. When we arrive, we are greeted by various people checking up on Sarah. They all say the same thing. "Boy, this doesn't seem like the same kid we saw yesterday."
She looks great. She has her color back and the belly is not nearly as bloated. Her eyes aren't puffy at all.
The McCues show up to visit. They have been fabulous to us during all of this. Brian has shown up several times and have done more than we ask. Lexi is usually our goto person for baby sitting and other general help, but this time they have really gone above and beyond. It really helps to have family around.
Everyone has remarked at Sarah's progress. They also remarked at how concerned they were yesterday. Once again, Thank God it's 2007.
Being involved with the foundation, we hear about things that are going on in the area. In April we heard about a couple that had a child with CF and might want to talk. We passed on our info, but did not hear anything. We also knew that that child was still in the NICU. We met with them today. It was nicely timed with the McCue visit and I think it was good for them to meet, not one, but two CF families.
We all talked about our experiences. I feel lucky to have Will and Sarah.
Shortly after that, our nurse commented to me that she was amazed that we had Sarah after having Will. Although that is an obvious observation, I guess I never really thought about to much. Until recently, my reference point has always been Will and Luke. They are doing so well. I know that the risk was there, but didn't really think it would strike us twice, and if it did, we could deal with another Luke or WIll.
Now, being so involved with the Foundation, and seeing such a wide range of CF kids, I realize how uncommon Luke and WIll are.
I sure hope Sarah can beat this and thrive with the disease. We will find a cure. I am certain of it.
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I heard about all of this when they announced Sarah during the intentions at church, and the women's club sent out an email. I hope everything goes well, we are praying for you so hard! Hang in there!
~Michelle Ladonne
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